Sunday, January 27, 2013


                                           SHE HAS A BIG WORLD TO CONQUER

 Our two year old  great grand daughter, Monroe Daniel,  was born in December  2010.  She has a genetic disorder called " Esbobar Chromosome Disorder".  The genetic disorder causes shortened limbs, twisted limbs, incomplete joints,  breathing, eating and many other problems.   Monroe is alive because her mother  Nicole  bravely rejected three different times the offer by doctors to provide an  abortion.
 " I am going to give her  life!!".

 Before Monroe was born Nicole  found a nationwide support group for parents of AMC children.  Through them Nicole found Dr. Von Bosse at the Philidelphia Shriner's Hospital.  He specializes in children with joint problems and states he wants every child to reach their full potential.  The first thing he did was to "flatten" her feet.  They went every two weeks for new little casts.  When Monroe was a year old he surgerically readjusted the femur bones to properly fit  into her hip sockets so she could sit and crawl and walk.  When she is four he will adjust her knees that have some missing parts.   ( I am glad that Leland's dad gave a lot of money to the Shriner's Hospital for Crippled Children  in Los Angeles).   They were transported from  South Carolina to Philidelphia. for treatments and surgeries  by Angel Flight   Angel Flight   is staffed by volunteer retired pilots.   The Ronald MacDonald's house provides  them housing.

                                              Nicole vowed that her daughter would walk.

There have been many life threatening problems, multiple surgeries, and much pain for Monroe to go through. She will need more surgeries.  Her mother has heroically gone through  the many worries and sleepless nights alone because  Monroe's father left very soon  after Monroe was born.   He has made the divorce difficult.  Nicole has taken her maiden name back to Finley.

 Nicole is teaching Monroe to pray.  Here is the first prayer, Nicole wrote: "I helped Monroe pray this morning for my boss's dog. I asked her to say: dear god please help puppy. Amen.
Her translation? God. Please puppy. Amen."
Nicole wrote, " I hope  the Lord understands what she was supposed to say because we don't need another dog!"
  A little boy named Reese who lives in Oklahoma out grew his walker and sent it to Monroe to use.  Thank you, Reese.

                                          Nicole vowed that her daughter would walk.
                                          She is now saying, "My daughter is walking!!


 So this picture is of Monroe's newest  victory. (25 Jan 2013) She is independently mobile.  She walked for 45 minutes in the aisles of Lowe's.  Could this be "shopping therapy??
                                                  God is good.  His Mercy endureth forever.
                                                God is good. His mercy is new every morning.


No comments:

Post a Comment